HPS 2008 Kids Stuff "Road Trip"
Uploaded by: tommytillman
Video Description:
Here are the HPS Kids group for 2008, having lunch and going out to Eisenhower Park on Long Island to play games together.
It was fairly cold and VERY WINDY!!! But the kids and adults had a great time anyhow! Watch for a cameo by Grandma and Grandpa!! (more)
Tags for this video: Albinism Albino Blindness Disease Firbosis GoodSearch Hermansky HPS Lung Network Pudlak Pulmonary Syndrome
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